Tag Archives: recommended posts

February 2012 Recommendations

My recommendations for disability posts, organizations and even recent dvds and movies are going up a little early this month and I hope you explore the links that catch your eye.  Please share your reactions to any of them.

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December 2011 & January 2012 Recommendations

I wish a blessed and happy 2012 for each of you!  Thank you for sharing and allowing me to share throughout 2011.

Our Life
PTSD and the Special Needs Parent – I agree completely
Notes From A Dragon Mom – yep, recommending this one again in case you missed it!
Bloom Burden of Complex Kids Not Whole Picture
Does Every Child Matter?
Don’t Be Shy 
Courage 
teacher joins the special needs ranks 
The Freedom To Tell It Like It Is 
Messengers… Our Duty as Parents of the Disabled 
Sustaining Life… 
Dear Shopper Staring at My Child 
Being Retarded 
An Apology from Your Child’s Former Teacher 
What If You Had Autism for a Day? by Debra Japzon Gillum 
5 Things Never to Say to a Special Needs Parent 
5 Things You Should Know
Listen to my Words
Bullying Doesn’t Have Rules 
From the Darkness 

Helpful Tips & Resources
It may be December, but I personally need to remember this hint.  Riley cannot possibly swat away mosquitos.  I am always finding some mysterious bite from some sneaky bug.

RECYCLE 

The Clubfoot Project – Donate old AFOs In Uganda and Papua New Guinea they are utilizing used AFO’s. “We accept its not ideal to recycle AFO’s but there is no local skill for making custom splints. So it’s a matter of having enough pre-loved AFO’s to find one to fit the required foot. The kids are actually lucky if they get a pair of shoes to help maintain position.”

ESE

Understanding Special Education: Downloadable guides for the IEP & 504
Top 10 Ridiculous IEP Comments


Disability Paradox
A Fate Worse Than Death


Remembrance
Now I Lay Me Down To Sleep: Free portraiture photography to families suffering the loss of a baby.



Accessories, Toys and Adaptive Sports
Tubie Friends educational stuffed animals for children with feeding tubes

AblePlay – play products for children with Special Needs
Setting the Stage for Successful Performances p. 13
Crossfit is for EVERYONE – Saratoga Highschool


In NEED of Support
Cooper’s HouseCooper is my 3 year old son who suffers from cerebral palsy. We had a custom playhouse built for him to aid in his therapy. Our neighborhood association is making us get rid of it. Read my letter to my neighbors for the whole story.
Freedom Waters Foundation slide show by volunteer 
Freedom Waters Foundation January 2012 News

Health & Safety
Fat Means Fast
Needy Meds 
Register your Child with Police




Books, DVDs, Magazines & Reference
New Documentary
Top Films for the Differently Abled 
2011 Family Cafe Questions and Answers 
Walk A Mile In Their Shoes – Bullying and the Child with Special Needs

Wildlife – May not fit with the rest but it’s important too

Wildlife Waystation: Funded solely through corporate and foundation grants, private donations sponsorship and bequests, the current recession has seen donations drop 50% Our financial situation is the worst in 35 years.
Adamholic 
Keep Me Wild

Bully
Bully on the Bus, ebook

Humor
Well, He Did Ask…

Healing, Empowering and Thriving: "Non-Person Humans"

Healing, Empowering and Thriving: “Non-Person Humans”: Elie Wiesel “We must not see any person as an abstraction. Instead, we must see in every person a universe with its own secrets, with …

Painting for Hailey: I am the child

Painting for Hailey: I am the child: I have posted this one in the past, but since I have so many new readers, I thought I would repost. It is so important for everyone to under…

Little Brother Turns 7!

We celebrated Ronan’s 7th birthday this past weekend.  We threw a joint party along with our his classmate, our friends’ and neighbors.  It was a wonderful event.  For Riley it was a long one as he had to spend much more time than we would have liked in the wheelchair; he did however appreciate all the energy around him.

Taking the time to celebrate, reminds us of the importance of our family and feeding our souls.
It was a Happy Birthday!  Stacie


Freedom Waters Foundation Harnesses the Power of the Sea by Stephen Brown

Now I Can : Help Raise Awareness

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November 2011 Recommendations

Each of these links speaks for itself.  Thanks for coming by and exploring.
Contemplative Hmmmmm
Our Life
If you are not a caregiver, imagine yourself repeating this moment every day of your child’s life and attempting to live your life around these moments: Day 5000
Instructional Ian’s Shoelace Site

 Sensitivity & Training

Medical & Diagnosis

Have You Ever Thought…
Med 101 
Bee Aware of Epilepsy 
Understanding Medical Terminolgy on Prescriptions
Etymology of Neuroscience Terms
Brainline 
5 Things Doctors Won’t Tell You

Toys & Creative

  Song for those with Disabilities – MP3 or words: Worship Matters
Interactive Auti Toy
Down Syndrome Exhibition – Dublin Arts Council
Special Needs Toy Guide 
Photographing in the NICU/World Prematurity Day 
Toy Guide with and without Disabilities  


Books, Magazines, News & Periodicals

Struggle for Care: Mother Fights to Get Special Needs Son Back Home
How the Special Needs Brain Learns
Good Health News 
Different Dream Parenting: A Practical Guide to Raising a Child with Special Needs
FFDD News
Freedom For Ayn 
Special Needs Book Review

 

Television & Radio

OWN show audition by Zach Anner
Man with Cerebral Palsy to host own show
Family Network Radio

Special Class Blogs for ESE Ideas

A Special Kind of Class

The Schroeder Page!
Kindergarten Crayons
Extra Special Teaching
Life In Special Education
Adaptations for Kids
Rainbows Within Reach

Connecting

Spiritual Directors International
Forum for Families 
Net Buddy UK
Sibs.org.UK

 

Bully




Shut Up About Your Perfect Kid


Behavioral

Does Special Needs Dampen Teen Sexuality? 

Current Issue | Parenting Special Needs Magazine

Current Issue | Parenting Special Needs Magazine

Speak Now for Kids! Support Programs that Keep America’s Kids Healthy

Speak Now for Kids! Support Programs that Keep America’s Kids Healthy

Appointments and Illness

There is so much I have planned for this blog and so much I want to say… However, there are a few problems getting in my way: primarily, time and energy.

On Monday Riley had his annual pediatric check up.  He did really well.  He is always so cooperative and pleasant.  This year, we opted to give him a flu shot.  Yes, it’s controversial.  However, caring for a sick child with multiple disabilities is one of the saddest and most difficult experiences a person may ever encounter.  Trust me on this.  I’ve done it and I don’t like putting Riley or any of the family through it if it can be helped.  A sick typically developing child may be challenging but it is nothing compared to going through it with special needs.

Our pediatrician is wonderful.  One thing we always cover is the well-being of Riley’s parents – yep, that’s John and I.  We ride an emotional roller coaster.  This is another on-going subject that I have been avoiding.  Admittedly, we are challenged by our role in life and being 9 years behind.  I do not actually care to delve into this today – in fact, I am unsure when I care to get into this.  For now, let’s leave it at the fact that being a Special Needs Family is not particularly easy.  The conversation went on that some do handle it and some do not – it seems to be some individual parents are stronger than others.  I object.  I believe that it is far more than simply can you handle special needs or not…

The special needs community frequently uses the phrase “a bullet is a bullet.”  Really, I do not think all bullets strike the same.  When your child can get him or herself to the table eat unaided, I do not believe the bullet did the same damage as all the others.  Fine, object with me.  This is my observation and this is how I feel. Perhaps all bullets are not created equally.

A few hours after a good report with Pediatrician, Riley came down with a flu.  As usual, joke is on us.  It has been a rough couple days.  Riding Monday evening had to be cut short as he began to whine as he was jostled around.  I happened to be side-walking with another girl in the class as I happened to be a little taller to be alongside her horse and the other available volunteer could reach Riley: my very first direct experience with any other special needs rider.  This was another surprise to me.  The rider also had multiple disabilities, and she was considerably older and large than Riley.  I had to mentally brace myself for the next half hour of hard work.  To my great surprise, she sat up herself and held her reigns.  I was simply there for safety.  No leaning on me.  No sneezing on me.  No pushing arms and elbows into place for proper weight-bearing.  This was unbelievably easy.  Could I possibly say to her family, “Wow, she’s easy to work with!”  Somehow, I doubt they would agree.  Could they possibly know that I found side-walking with their child to be a breeze?

Oh dear, that paragraph got all sidetracked!  Where was I going with that?  Riley was sick.  And was he sick.  I was replaced as a side-walker to remove Riley from the ring.  Gathered up my people: my Mom, Ronan and neighbor Annie who now volunteers helping to groom and tack while earning her high school community service hours.  Then on home we went.  Riley and I were up and down throughout the night to keep his fever under control and attempt to stop the incredible leg tremors – oh, I know I’ve talked about tremors here and there in this blog – I better tag them because they’re important.  When we weren’t under the fan we were in my bed, my arms wrapped around him reaching on each side to pull up on the toes of both feet in an attempt to calm the tremors, but unfortunately adding my heat to his in the process.  Any wonder why some parents keep their special needs children apart from the rest of us… illness is truly horrible and this wasn’t even a particularly bad event.

A rare event: Riley napping, and alone in his bed yet.
This has happened perhaps five times at the most in his lifetime.

Couple of posts to share today…
A post on respite for families – it’s a lifesaver, I promise: Respite: An Interval of Rest by Special Needs Ministry.
To my great relief I am not the only parent deserving of the title – Mother’s from Hell.

There was more to say, but my time is up.  At 3:30 pm my day is done as the end of the school day has arrived.  Well, I hope there aren’t too many typo’s and such, because this is a blog and I’m moving on with my day.

We are all special… I think… though I complain and want to compare bullets with you… by Stacie Wiesenbaugh

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