Feeling Star Wars for Halloween?
Last year I decked Riley’s chair out as an X-Wing Starfighter. This wheelchair costume doesn’t need great skill, just a little imagination and patience. Thought I would share how Riley’s X-Wing came together.
A Guide to Holiday Routine (sucks but doesn’t suck)…
(subtitle ‘Tis the Season)
Routine will help you survive… Routine normally sucks. Every day the same. Know the schedule on the caregiving, medications, therapies, bedtime/awake time, naps (yeah, right!) … Routine kills me. As a former adrenalin junkie/Generation Whatever… But, routine can help for the holidays. Spend your time with the same people and in the same places: Rule #1
The holiday season has kept us pretty busy… Daddy makes sure Riley can participate in any celebration. This is not an easy task so decorating the wheelchair is usually the first step. Today Riley’s class will watch The Polar Express. His chair is covered in lights as well as a musical ornament. They’ll know he’s there today!
Last week John let me tag along to his school presentations as The Shark Tooth Guy. First he met Kindergartner’s in Mrs. Doyle’s classroom then on to the 1st Graders, including Ronan.