It came upon us suddenly, but unlike many things in our lives (with disabled), this was not bad: Grandparents Day. My wife and I both lost our grandparents earlier than we would have liked. Unlike myself, my sons will not know their Great-Grand-Parents or even their Grandfathers. However, both our sons are Blessed in Many Ways by their Grandmothers.
Having a disabled child is hard. People often focus on the parents as they are the ones to deal with the child (or disabled adult) on a daily basis. However, I often think about what it would be like to be a grandmother. There are expectations of playing with them in a “typical manner”… or at least hearing them say your name (“Kappi” or “ReRe” in our cases).
Having a disabled grandchild is not what you would expect. Not to speak for our circumstance, but IF I WERE A DISABLED GRANDPARENT… I guess I would not always know what to say to help my child and grandchild. Physically, I might not be able to hold my grandchild (due to mood or physical constraints). It does not mean that we are not able to be AMAZING grandparents.