Tag Archives: family

Enter the Teenager

I have kids (Wow.. who would have guessed 20 years ago!)… But now the next milestone… I have a Teenager! Riley turned 13 this past weekend. Reflecting back lots of memories and adventures and Crazy Times (CT)…. need the CT’s otherwise we would all go insane (ok, moreso).

Give Me Food

Not a self-promoting post… I network market products and companies that I truly believe in.   This month I decided detox, an Arbonne program… a great program… which is working for me. Yay! But seriously:   Ever try to go to Mother’s Day Brunch with an amazing chef and a pastry chef who has been rewarded so many awards and accolades? (have you ever seen two elderly women go after the last hand crafted, chocolate peanut brittle, covered in a white powder so innocent it will remind you of your childhood,

Welcome to 2015

Riley’s Smile was missing much of 2014.  This past year we took a few too many steps backwards and his smile actually went away.

My goal for 2015 is to return Riley’s smile to him and keep it there.

my Dad



There are so many conversations I need to have…

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So much guidance I still need…

Once more I must hear “I love you”…

One more opportunity to tell you how much you mean to me…

Twenty years ago today you left us to fend for ourselves…

How I need you to be part of my life now.

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Blue Belt

As Friday December 13th approached, Tae Kwon Do Testing loomed huge in my mind.9th bday & blue belt 12-13-13 452

How is it possible to support both of my very different children at any one time?

Our Road

This life is hard!

There’s a blog post everyone is clamoring to read.  Yes, that’s my sarcasm for today.  But, who thought sharing the special needs journey was going to be joyful. 

Family Fun

Family activity is a priority.  It sounds so simple: one little family having experiences together. We are after all, just a family of four.

It’s a little Stormy

We did it!

We debated for years.

Snow Respite

Last fall, my sister Michelle started calling with a plan…. a plan to visit her family in New Hampshire.  What was she thinking? 

Grandparents Day

It came upon us suddenly, but unlike many things in our lives (with disabled), this was not bad:  Grandparents Day.   My wife and I both lost our grandparents earlier than we would have liked.  Unlike myself, my sons will not know their Great-Grand-Parents or even their Grandfathers.  However, both our sons are Blessed in Many Ways by their Grandmothers.

Having a disabled child is hard.  People often focus on the parents as they are the ones to deal with the child (or disabled adult) on a daily basis.  However, I often think about what it would be like to be a grandmother.  There are expectations of playing with them in a “typical manner”… or at least hearing them say your name (“Kappi” or “ReRe” in our cases).

Having a disabled grandchild is not what you would expect.  Not to speak for our circumstance, but IF I WERE A DISABLED GRANDPARENT… I guess I would not always know what to say to help my child and grandchild.  Physically, I might not be able to hold my grandchild (due to mood or physical constraints).  It does not mean that we are not able to be AMAZING grandparents.


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