Tag Archives: celebration

Holy Thursday

Today we mourn, tomorrow we Rejoice. Happy Easter!

My boys were invited by Fr. Bob to the Holy Thursday Washing of the Feet, St. John the Evangelist. April 13, 2017

Enter the Teenager

I have kids (Wow.. who would have guessed 20 years ago!)… But now the next milestone… I have a Teenager! Riley turned 13 this past weekend. Reflecting back lots of memories and adventures and Crazy Times (CT)…. need the CT’s otherwise we would all go insane (ok, moreso).

Mama’s Birthday Today

My little guy sang for me on my Birthday with the help of Music Kim, our amazing music therapist. 

leaving the battlefield

Over the years, we have been working and praying toward life becoming just a little easier. Hoping for less pain and more joy for Riley, a little more sleep, a few less knocks, a little less struggle… Easier never really comes along despite our efforts; it simply changes. bday celebration

Shall He Walk?

There are many questions for myself today. But, I have very few answers.

Valentine Wrapping

Classroom Valentine Art Feb 2015

The last few months of our journey have been a little extra challenging.  But now it’s time to resume Riley’s Smile.

Family Brunch

Out for Brunch at Collier’s Reserve Country Club, Feb. 15, 2015.

Last Thursday I discovered John working on Riley’s chair. 

Halloween Tie Fighter

Riley’s Halloween costume was a great success!

Stranger Than Most

A pre-Halloween post… What is it about Halloween and Riley that is special to me?   Dressing up and pretending you are someone else…

Functional Skills Thanksgiving

Riley and his class invited their families to share a Thanksgiving feast.  This is a yearly celebration hosted by Rayma C. Page Elementary when families share the lunch hour with their children’s classes while feasting on a traditional meal by the cafeteria.   Parents filled the school; they lined up alongside just like their children at reception, outside schoolrooms, and the lunch line.  It is wonderful to see how this yearly celebration has helped the school become a beloved community.

Riley Turns 10!

It seems appropriate to celebrate Riley’s Tenth Birthday under Hurricane Isaac skies.  He had a wonderful time swimming  yesterday, all of Florida closed down for hurricane watch.  Here is the first photo of Riley.  It was taken by a UCLA Santa Monica NICU nurse nearly 24 hours after his traumatic birth.  The Poloroid commemorates the 3:30 am receiving of the Baptismal and Annointing of the Sick Sacraments (formerly known as Last Rites).  It has been quite a ten year journey and I still cannot imagine where it goes from here. 

We sent him off to school with celebratory birthday foods.  These aren’t the typical cupcakes found in the classroom but already prepared and mushed fruit and pie fillings that Riley and his classmates can handle.  Yum!

Happy Birthday Riley!

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