We all heard the news Wednesday morning reporting the accidental death of a teen but made no connection. Unfortunately, there is a very real connection. Nicholas is a special needs rider with Naples Equestrian Challenge as is my own child. I have been watching and identifying with Theresa’s trials for years. Now I can only imagine her grief and how her future has changed. Please take a moment to say a prayer for Nicholas and family. Should you wish to help please send donations to the address below.
Category Archives: Taboo
My wife was playing with a post for tonight… Bit too technical for me (medical terms and all). I work in Information Technology so that is saying a lot… But I read one thing she wrote and decided to run with it… (LOL … keep on Running until the Devil knows you are gone… Country fans will get it…)…
In planning, our doctor notes that “complex Neurologic issues can cause unexpected results.”
That is the PERFECT note: To the point as it describes our life and the lives of many who read this post.
Sometimes I feel like there is no one in the world that understands how my life works. Surely if there were more people who understood the ins and outs of daily life for people like me, more people would be considerate… right?
I have to tell you a story about a time I went to St. Augustine.
As a mom of a special child I am resigning myself to the fact that there may be some things that occur to our children that are beyond the scope of knowledge of the medical profession. A very difficult “pill” to swallow as we want to believe that they can find the source and “fix” or prevent these things from happening…
As I write this, we are on day 6 of hospitalization from yet another fever episode. Kaet, without warning started showing signs of an “episode” and the school staff called 911 and then me. The school nurse describes the episodes as turning cyanotic and grey/clammy skin color along with respiratory distress. By now (as this is the 3rd time this year), we know that means the fever is coming; the nurse checked right away and got a reading of 99 degrees, shortly before EMS arrived she attempted another reading and it was just above 100 degrees; by the time EMS arrived at the ER, she had skyrocketed to 108.1 degrees!! – yes AGAIN, my baby girl’s body was “cooking”.
This post has been written and rewritten in my head. Most of them are. Sitting down to the keyboard and examining the events of our life here is often an achievement simply in time and energy to complete my task. Beyond that, I ask myself to be candid (to a reasonable degree) with myself and my audience. Of course, to relate my life I must confess my own faults as well as revealing the ones I discover in this very strange special needs life. Earlier this week, a friend and special needs mom, S.S., referred to my blog as “blunt.” Blunt? This, I believe, she intended as a compliment. So, I will continue to strive for blunt since it seems to be my style.
Now, here we are when I must confess and address my own faults. But I need to recognize my faults and methods without altering my purposes. I have already admitted throughout the life of this blog that at times I can fall very easily into the role of Mama Bear (at times referred to as “Crazy Woman”). As last Monday dawned, I had a few subjects on my mind to address this week via this blog: special needs camps and wheelchair accessible vehicles. I expected the week to be fairly calm as Ronan headed off to a day camp and Riley spent one on one time at home with me. Unfortunately, my head seems to be stuck in Park back at the camp parking lot.