Category Archives: On From Here

Worse than the Disease

We had all let Riley down: doctors, therapists, orthotists, hospital staff and his own parents. While he was spending his surgery recovery period in a maple leaf brace a pressure ulcer was carving itself along Riley’s spine. I had released Riley from the brace as soon as clearance was given… but it was far too late and the damage was done.

Cerebral Palsy Awareness

World CP Day is being celebrated around the globe today, October 1st, 2014.

Afflicted by Cerebral Palsy is not actually how I view Riley’s condition. 

Buck Brother’s: The Movie

 

Top Ten Self-Disclosures

My wife was playing with a post for tonight… Bit too technical for me (medical terms and all). I work in Information Technology so that is saying a lot… But I read one thing she wrote and decided to run with it… (LOL … keep on Running until the Devil knows you are gone… Country fans will get it…)…

She wrote:

In planning, our doctor notes that “complex Neurologic issues can cause unexpected results.”

That is the PERFECT note: To the point as it describes our life and the lives of many who read this post.

Healthy Inside and Out

Why is it so important to gain control over your health?

As life demands our attention, most of us allow our health to slide.

Let Freedom Ring: Riley Style!!!

Does anyone know why there are no knock-knock jokes about the Fourth of July? ,… Because freedom likes to Ring!

Loggerhead Tracks

Happy 4th of July!

Our family has been earning our own Independence, one day at a time.

What does it take to be a Special Needs Dad

What does it take to be a Special Needs Dad?

1.)    Have fun: Being a dad can be fun. Honestly, I never wanted kids but couldn’t imagine my life without them. It is fun. If you let it be:

Word of the Week: Dichotomy

Word of the Week: Dichotomy.

A division or contrast between two things that are or are represented as being opposed or entirely different.

I always loved this word. I was the only one who got it right on a quiz once. But I guess I have come to question/hate/understand it a great deal lately… I guess this is one for the blog…

Going

Recently we visited our first potential residential school for my 15-year-old son Alex (PDD-NOS). The car service whisked us for two hours to a sprinkling of one-story buildings across what no doubt was once a meadow. These schools seem to be mushrooming and expanding; many of the buildings smelled of new lumber and of crisp appliances just released from cartons.

The staff made us welcome, fetched us bottles of water and said Alex would spend most of our visit in a classroom. “No!” said Alex, pulling away. “Car!”

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