Category Archives: Medical & Therapy

World Prematurity Day 2016

November is National Prematurity Awareness Month and today happens to be World Prematurity Day.

Most of us do not think about prematurity.  Premature babies happen to someone else.  Right?

Imperial River with FWF

We were blessed yet again to have the wonderful not-for-profit Freedom Waters Foundation

ER Tour

Riley’s school reading across my phone during the school day would normally put me on guard immediately. However, Riley’s bus could not even have reached the school yet.

“Hello, I am the Vice Principal of Riley’s School….”she started. “We have been trying to reach you.” You have?

Feeding and Positioning For Children With Cerebral Palsy

This past year, the very wonderful functional skills teaching assistant, Miss Amy took her love of the children and moved on to begin a career in Occupational Therapy.  She has been dearly missed in the classroom, but we know she can now help so many more children now that she is not limited by the school walls.  Any parent of a child with feeding issues already has a field education in Feeding Therapy and is always striving to make this little area of life easier, more efficient and even enjoyable.  Miss Amy kindly agreed to share her feeding therapy study with Riley as her partner.

Feeding and Positioning For Children With Cerebral Palsy

Yes on 2

For those in Florida tomorrow is voting… Please Vote “Yes” on 2 (the marijuana amendment). Yes, the way it is written is flawed

Worse than the Disease

We had all let Riley down: doctors, therapists, orthotists, hospital staff and his own parents. While he was spending his surgery recovery period in a maple leaf brace a pressure ulcer was carving itself along Riley’s spine. I had released Riley from the brace as soon as clearance was given… but it was far too late and the damage was done.

Post Op

Recovery from Bilateral Hip Adductor and Iliopsoas Releases with Brace Application challenged our entire family. We were all patient and prepared but had been optimistic that Riley’s recovery period would be short given our dedication to his well-being.

Surgery Discharge

Surgery could have been yesterday in my mind. Let me see, it was back on August 25th and I am ready to recount arriving in the recovery room.

Riley made it through the surgery without complications.

Riley, however, disagreed with the complication free assessment.

Into Surgery

It has been a long road for this family since committing Riley to Bilateral Hip Adductor and Iliopsoas Releases with Brace Application.


Arriving with Dad for surgery. Golisano Children’s Hopsital of Southwest Florida

On August 5th Riley and his Dad, John, headed up

Hip Surgery Risks

On several occasions throughout the past year, John and I weighed the merits and risks of putting Riley through soft-tissue lengthening to alleviate the strain his tight tendons were putting on the left hip joint.   We knew that eventually Riley would require the surgery.

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