Category Archives: Life of Riley

Holy Thursday

Today we mourn, tomorrow we Rejoice. Happy Easter!

My boys were invited by Fr. Bob to the Holy Thursday Washing of the Feet, St. John the Evangelist. April 13, 2017

Holiday Appreciation Gifting

The Holidays are always so amazing. The cooler air, decorations, events, mutual appreciation… I look forward to almost all of it. Gift giving, however, is a challenge. It is especially daunting when so very many individuals are responsible for the well-being of my special needs child.  There are PTs & OTs, Para’s, riding instructors and multiple volunteers, hospice nurses and social workers, respite aids, a bus driver and bus aid who are so very kind, school infirmary staff and even three teachers. Who am I forgetting?

X-Wing Wheelchair Costume

Feeling Star Wars for Halloween?

Last year I decked Riley’s chair out as an X-Wing Starfighter.  This wheelchair costume doesn’t need great skill, just a little imagination and patience. Thought I would share how Riley’s X-Wing came together.

14th Birthday

Sunday, Riley turned 14. One photo for each of the years. Rough start, but through the Journey you have taught me (us) so much about being a parent and who we are. Here is to continued Joy in 2016 and more embarrassing photos. We Love You Riley!

2002… Months in hospital… all behind him/us.


ER Tour

Riley’s school reading across my phone during the school day would normally put me on guard immediately. However, Riley’s bus could not even have reached the school yet.

“Hello, I am the Vice Principal of Riley’s School….”she started. “We have been trying to reach you.” You have?


John and Ronan have been preparing this past year to enter martial arts tournaments with their Tae Kwon Do Sparring mates.  The first tournament finally presented itself this past weekend as IMAF at the ESPN Wide World of Sports Complex.

Enter the Teenager

I have kids (Wow.. who would have guessed 20 years ago!)… But now the next milestone… I have a Teenager! Riley turned 13 this past weekend. Reflecting back lots of memories and adventures and Crazy Times (CT)…. need the CT’s otherwise we would all go insane (ok, moreso).

Preserving the First Day of School

We are on the countdown for the first day of school. 

Freedom Waters

Sunday proved to be a beautiful day. A light breeze brought the heat down as Riley, Ronan and I met up with a gathering of special needs families called in by the amazing Debra Frenkel of Freedom Waters Foundation

Mama’s Birthday Today

My little guy sang for me on my Birthday with the help of Music Kim, our amazing music therapist. 

Powered by WordPress | Rileys Smile