Inspired by Riley

Holiday Appreciation Gifting

The Holidays are always so amazing. The cooler air, decorations, events, mutual appreciation… I look forward to almost all of it. Gift giving, however, is a challenge. It is especially daunting when Sharing our Special Needs Journey. More »

X-Wing Wheelchair Costume

Feeling Star Wars for Halloween? Last year I decked Riley’s chair out as an X-Wing Starfighter.  This wheelchair costume doesn’t need great skill, just a little imagination and patience. Thought I would Sharing our Special Needs Journey. More »

14th Birthday

Sunday, Riley turned 14. One photo for each of the years. Rough start, but through the Journey you have taught me (us) so much about being a parent and who we are. Sharing our Special Needs Journey. More »

ER Tour

Riley’s school reading across my phone during the school day would normally put me on guard immediately. However, Riley’s bus could not even have reached the school yet. “Hello, I am the Sharing our Special Needs Journey. More »

Sparring

John and Ronan have been preparing this past year to enter martial arts tournaments with their Tae Kwon Do Sparring mates.  The first tournament finally presented itself this past weekend as IMAF Sharing our Special Needs Journey. More »

Holiday Appreciation Gifting

The Holidays are always so amazing. The cooler air, decorations, events, mutual appreciation… I look forward to almost all of it. Gift giving, however, is a challenge. It is especially daunting when so very many individuals are responsible for the well-being of my special needs child.  There are PTs & OTs, Para’s, riding instructors and multiple volunteers, hospice nurses and social workers, respite aids, a bus driver and bus aid who are so very kind, school infirmary staff and even three teachers. Who am I forgetting?

World Prematurity Day 2016

November is National Prematurity Awareness Month and today happens to be World Prematurity Day.

Most of us do not think about prematurity.  Premature babies happen to someone else.  Right?

X-Wing Wheelchair Costume

Feeling Star Wars for Halloween?

Last year I decked Riley’s chair out as an X-Wing Starfighter.  This wheelchair costume doesn’t need great skill, just a little imagination and patience. Thought I would share how Riley’s X-Wing came together.

Mother & Child Cruise

Riley and I had the pleasure of being guests on a Freedom Waters Foundation cruise of the Naples area aboard The Edison Explorer. Gretchen Scott Designs sponsored the Sunday morning trip for special needs individuals and their moms.

14th Birthday

Sunday, Riley turned 14. One photo for each of the years. Rough start, but through the Journey you have taught me (us) so much about being a parent and who we are. Here is to continued Joy in 2016 and more embarrassing photos. We Love You Riley!

2002… Months in hospital… all behind him/us.

2002

Goodbye, Sleepy Beach Town

7/14/16 Seems rather a sad way to spend my birthday, seeing my city in jeopardy. The life we have here with Riley is at risk. Learning just yesterday from a friend that a road would possibly be coming down my own backyard, I attended a City Council Workshop, City of Bonita Springs, Florida Thursday July 14, 2016.

Coast Causes

Gathering Riley up from school Monday for OT earlier this week, the woman at the front desk handed me a page from newspaper.  She had spotted Riley in The News-Press of Fort Myers, April 18th, 2016 Causes: Toast of the Coast page 3D.

I just love the little gestures!

Immokalee Road Tragedy Close to Home

We all heard the news Wednesday morning reporting the accidental death of a teen but made no connection. Unfortunately, there is a very real connection. Nicholas is a special needs rider with Naples Equestrian Challenge as is my own child. I have been watching and identifying with Theresa’s trials for years. Now I can only imagine her grief and how her future has changed. Please take a moment to say a prayer for Nicholas and family. Should you wish to help please send donations to the address below.

Boy with Special Needs Killed in Collier County

Imperial River with FWF

We were blessed yet again to have the wonderful not-for-profit Freedom Waters Foundation

Functional Skills Classroom Components

Time for this mom to begin doing serious planning on research concerning IEP’s and the school environment.  Riley’s school career had a rough start, however his elementary school experience has been a very healthy and positive experience.

Rayma school pic

Rayma school pic

This school year Riley has moved on to a Middle School.  The new classroom situation is best described as underwhelming.  This is not a situation I find I want to continue to send my child into each day. To make changes, it is time for me to fully understand what his needs are and what should be expected of his school.

Powered by WordPress | Rileys Smile