Inspired by Riley

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ER Tour

Riley’s school reading across my phone during the school day would normally put me on guard immediately. However, Riley’s bus could not even have reached the school yet. “Hello, I am the Sharing our Special Needs Journey. More »

IMAF 10-15 (3)

Sparring

John and Ronan have been preparing this past year to enter martial arts tournaments with their Tae Kwon Do Sparring mates.  The first tournament finally presented itself this past weekend as IMAF Sharing our Special Needs Journey. More »

Riley is in better shape than me! Look at those abs! Ok, that was a time ago. I think we are even now.

Enter the Teenager

I have kids (Wow.. who would have guessed 20 years ago!)… But now the next milestone… I have a Teenager! Riley turned 13 this past weekend. Reflecting back lots of memories and Sharing our Special Needs Journey. More »

Riley school portrait 2011

Preserving the First Day of School

We are on the countdown for the first day of school.  Sharing our Special Needs Journey. More »

Freedom Waters Foundation takes several special needs families - each on their own vessel - out on the Gordon River, Naples, FL. Alec Shreck reporting. August 9, 2015

Freedom Waters

Sunday proved to be a beautiful day. A light breeze brought the heat down as Riley, Ronan and I met up with a gathering of special needs families called in by the Sharing our Special Needs Journey. More »

Goodbye, Sleepy Beach Town

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7/14/16 Seems rather a sad way to spend my birthday, seeing my city in jeopardy. The life we have here with Riley is at risk. Learning just yesterday from a friend that a road would possibly be coming down my own backyard, I attended a City Council Workshop, City of Bonita Springs, Florida Thursday July 14, 2016.

Coast Causes

News-Press Causes 4-16

Gathering Riley up from school Monday for OT earlier this week, the woman at the front desk handed me a page from newspaper.  She had spotted Riley in The News-Press of Fort Myers, April 18th, 2016 Causes: Toast of the Coast page 3D.

I just love the little gestures!

Immokalee Road Tragedy Close to Home

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We all heard the news Wednesday morning reporting the accidental death of a teen but made no connection. Unfortunately, there is a very real connection. Nicholas is a special needs rider with Naples Equestrian Challenge as is my own child. I have been watching and identifying with Theresa’s trials for years. Now I can only imagine her grief and how her future has changed. Please take a moment to say a prayer for Nicholas and family. Should you wish to help please send donations to the address below.

Boy with Special Needs Killed in Collier County

Imperial River with FWF

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We were blessed yet again to have the wonderful not-for-profit Freedom Waters Foundation

Functional Skills Classroom Components

Riley showing off

Time for this mom to begin doing serious planning on research concerning IEP’s and the school environment.  Riley’s school career had a rough start, however his elementary school experience has been a very healthy and positive experience.

Rayma school pic

Rayma school pic

This school year Riley has moved on to a Middle School.  The new classroom situation is best described as underwhelming.  This is not a situation I find I want to continue to send my child into each day. To make changes, it is time for me to fully understand what his needs are and what should be expected of his school.

ER Tour

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Riley’s school reading across my phone during the school day would normally put me on guard immediately. However, Riley’s bus could not even have reached the school yet.

“Hello, I am the Vice Principal of Riley’s School….”she started. “We have been trying to reach you.” You have?

mother and child

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Dear Mom

We did not know each other

Early this morning I followed through on a shared post

I felt you in my heart since the first moment I learned of you

This news report was brief, unemotional

Yet I recognized you and your child

I know you intimately

Sparring

IMAF 10-15 (3)

John and Ronan have been preparing this past year to enter martial arts tournaments with their Tae Kwon Do Sparring mates.  The first tournament finally presented itself this past weekend as IMAF at the ESPN Wide World of Sports Complex.

8th Kup & Our Papal Visit

This photo appeared in many papers. Stacie has been an incredible advocate for Special Needs. The article(s) was on RSV (breathing issues with special needs). She has since advocated the hell to make Riley's School the model for the State of Florida (special needs programs). I don't think there isn't an administrator in the Lee County Schools who has not encountered (sorry) or head from/of her. I post this and know that she will take it as a compliment (as it was meant... although I have had to act at the United Nations... at times... my role was like causing a peace agreement between ISIS and the rest of the world). We all have our roles in the pursuit of Riley and Special Needs.

8th Kup – Yellow Belt Testing, Eagle Martial Arts

September 24, 2015

 

This week we have opportunity to witness change in one of our most solid institutions; Pope Francis is currently touring the America’s. Visiting Cuba he asked all to “serve people, not ideas,”

Enter the Teenager

Riley is in better shape than me! Look at those abs! Ok, that was a time ago. I think we are even now.

I have kids (Wow.. who would have guessed 20 years ago!)… But now the next milestone… I have a Teenager! Riley turned 13 this past weekend. Reflecting back lots of memories and adventures and Crazy Times (CT)…. need the CT’s otherwise we would all go insane (ok, moreso).

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