Inspired by Riley

Riley grooming Majesty at Naples Equestrian Challenge. January 12, 2015

a little voice

We are very fortunate to have a kind and caring team of driver and attendant. Truthfully we have been very fortunate over the past several years, discovering kind and compassionate people behind Sharing our Special Needs Journey. More »

New Year's Eve

Welcome to 2015

Riley’s Smile was missing much of 2014.  This past year we took a few too many steps backwards and his smile actually went away. My goal for 2015 is to return Riley’s Sharing our Special Needs Journey. More »

Dec 4 2012 013

A Guide to Holiday Routine

A Guide to Holiday Routine (sucks but doesn’t suck)… (subtitle ‘Tis the Season) Routine will help you survive… Routine normally sucks. Every day the same. Know the schedule on the caregiving, medications, Sharing our Special Needs Journey. More »

Halloween 2014 353

Halloween Tie Fighter

Riley’s Halloween costume was a great success! Sharing our Special Needs Journey. More »

Buck Divin' Shark Cage.

Stranger Than Most

A pre-Halloween post… What is it about Halloween and Riley that is special to me?   Dressing up and pretending you are someone else… Sharing our Special Needs Journey. More »

a little voice

Riley grooming Majesty at Naples Equestrian Challenge. January 12, 2015

We are very fortunate to have a kind and caring team of driver and attendant. Truthfully we have been very fortunate over the past several years, discovering kind and compassionate people behind that school bus. Our driver this year has even gone to the Transportation Department successfully requesting to change the route to shorten Riley’s ride time. As usual, Riley is the most fragile on bus 27125 and both driver and attendant do every thing they can for their precious riders.

Welcome to 2015

New Year's Eve

Riley’s Smile was missing much of 2014.  This past year we took a few too many steps backwards and his smile actually went away.

My goal for 2015 is to return Riley’s smile to him and keep it there.

A Guide to Holiday Routine

Dec 4 2012 013

A Guide to Holiday Routine (sucks but doesn’t suck)…
(subtitle ‘Tis the Season)

Routine will help you survive… Routine normally sucks. Every day the same. Know the schedule on the caregiving, medications, therapies, bedtime/awake time, naps (yeah, right!) … Routine kills me. As a former adrenalin junkie/Generation Whatever… But, routine can help for the holidays. Spend your time with the same people and in the same places: Rule #1

Halloween Tie Fighter

Halloween 2014 353

Riley’s Halloween costume was a great success!

Yes on 2

Halloween Tie Fighter. Yes on 2!

For those in Florida tomorrow is voting… Please Vote “Yes” on 2 (the marijuana amendment). Yes, the way it is written is flawed

Stranger Than Most

Buck Divin' Shark Cage.

A pre-Halloween post… What is it about Halloween and Riley that is special to me?   Dressing up and pretending you are someone else…

Worse than the Disease

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We had all let Riley down: doctors, therapists, orthotists, hospital staff and his own parents. While he was spending his surgery recovery period in a maple leaf brace a pressure ulcer was carving itself along Riley’s spine. I had released Riley from the brace as soon as clearance was given… but it was far too late and the damage was done.

Post Op

Braced

Recovery from Bilateral Hip Adductor and Iliopsoas Releases with Brace Application challenged our entire family. We were all patient and prepared but had been optimistic that Riley’s recovery period would be short given our dedication to his well-being.

Cerebral Palsy Awareness

July 2014 053

World CP Day is being celebrated around the globe today, October 1st, 2014.

Afflicted by Cerebral Palsy is not actually how I view Riley’s condition. 

Surgery Discharge

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Surgery could have been yesterday in my mind. Let me see, it was back on August 25th and I am ready to recount arriving in the recovery room.

Riley made it through the surgery without complications.

Riley, however, disagreed with the complication free assessment.

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