Inspired by Riley

Buck Brother’s: The Movie

  Sharing our Special Needs Journey. More »

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Bell Rung

Sharing our journey here is meant to be more than a place to vent. My intention is to open a window for those on the outside of this complicated life to gain Sharing our Special Needs Journey. More »

Buck brothers 009

Raising a special needs child

This essay is in response to a request by CNNiReport about what it’s like to raise children with special needs: We were going to be parents! In 2002, my amazing husband, John, Sharing our Special Needs Journey. More »

Riley's Medical Journal filled with muscle spasm notes.

Battling Dystonia

Dystonia: Disorder which causes involuntary motion, twisting and/or repetitious movements of the muscles. Sharing our Special Needs Journey. More »

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Let Freedom Ring: Riley Style!!!

Does anyone know why there are no knock-knock jokes about the Fourth of July? ,… Because freedom likes to Ring! Sharing our Special Needs Journey. More »

my Dad

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There are so many conversations I need to have…

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So much guidance I still need…

Once more I must hear “I love you”…

One more opportunity to tell you how much you mean to me…

Twenty years ago today you left us to fend for ourselves…

How I need you to be part of my life now.

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Hip Surgery Risks

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On several occasions throughout the past year, John and I weighed the merits and risks of putting Riley through soft-tissue lengthening to alleviate the strain his tight tendons were putting on the left hip joint.   We knew that eventually Riley would require the surgery.

Arbonne events in Poland

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In just one week, Arbonne will be hosting four Discover Arbonne events in Poland.

Bilateral Hip Adductor and Iliopsoas Releases with Brace Application

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Riley leads a sedentary life. Sedentary is not exactly how I think of Riley. He has a lot of energy and being Riley takes a lot of energy. The reality, however, is that his activities are confined primarily to a seated position. My yoga instructor, Matthew, recently observed that “our body adjusts to how we live life.” In Riley’s case the body falls apart to how he doesn’t live life: no running, no playing, no exercise…

Buck Brother’s: The Movie

 

Bell Rung

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Sharing our journey here is meant to be more than a place to vent. My intention is to open a window for those on the outside of this complicated life to gain some understanding while sharing circumstances which may help those facing similar decisions and situations. Therefore, I do plan on talking about Riley’s surgery. But for the moment, I may be a little on overload. We all know the expression “When it rains, it pours.”

This is where we are today.

Top Ten Self-Disclosures

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My wife was playing with a post for tonight… Bit too technical for me (medical terms and all). I work in Information Technology so that is saying a lot… But I read one thing she wrote and decided to run with it… (LOL … keep on Running until the Devil knows you are gone… Country fans will get it…)…

She wrote:

In planning, our doctor notes that “complex Neurologic issues can cause unexpected results.”

That is the PERFECT note: To the point as it describes our life and the lives of many who read this post.

Ultimate Decision

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Some years ago Riley had a medical procedure done that I found barbaric. Basically it has something to do with his shunt… I called it the lightening rod procedure. Put a metal monitor (bolt) in his skull/brain (exposed) and hold him still for 48 hours, intended to be 24, so they can read what is going on. Given Riley’s expressive nature. Holding still was a task. But I did it (actually he did it… I was just along for the ride) and I never imagined anything worse…. Until recently…

Hip Subluxation

Surf Time

The decision has been made.

Raising a special needs child

Buck brothers 009

This essay is in response to a request by CNNiReport about what it’s like to raise children with special needs:

We were going to be parents! In 2002, my amazing husband, John, and I were expecting a baby boy.

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