Inspired by Riley

Halloween 2014 353

Halloween Tie Fighter

Riley’s Halloween costume was a great success! Sharing our Special Needs Journey. More »

Buck Divin' Shark Cage.

Stranger Than Most

A pre-Halloween post… What is it about Halloween and Riley that is special to me?   Dressing up and pretending you are someone else… Sharing our Special Needs Journey. More »

Erin visit 8-11-14 (37)

Post Op

Recovery from Bilateral Hip Adductor and Iliopsoas Releases with Brace Application challenged our entire family. We were all patient and prepared but had been optimistic that Riley’s recovery period would be short Sharing our Special Needs Journey. More »

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Surgery Discharge

Surgery could have been yesterday in my mind. Let me see, it was back on August 25th and I am ready to recount arriving in the recovery room. Riley made it through Sharing our Special Needs Journey. More »

Still waiting but Riley and Dad are keeping the ER staff entertained!

Into Surgery

It has been a long road for this family since committing Riley to Bilateral Hip Adductor and Iliopsoas Releases with Brace Application. On August 5th Riley and his Dad, John, headed up Sharing our Special Needs Journey. More »

Halloween Tie Fighter

Halloween 2014 353

Riley’s Halloween costume was a great success!

Yes on 2

Halloween 2014 366

For those in Florida tomorrow is voting… Please Vote “Yes” on 2 (the marijuana amendment). Yes, the way it is written is flawed

Stranger Than Most

Buck Divin' Shark Cage.

A pre-Halloween post… What is it about Halloween and Riley that is special to me?   Dressing up and pretending you are someone else…

Worse than the Disease

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We had all let Riley down: doctors, therapists, orthotists, hospital staff and his own parents. While he was spending his surgery recovery period in a maple leaf brace a pressure ulcer was carving itself along Riley’s spine. I had released Riley from the brace as soon as clearance was given… but it was far too late and the damage was done.

Post Op

Erin visit 8-11-14 (37)

Recovery from Bilateral Hip Adductor and Iliopsoas Releases with Brace Application challenged our entire family. We were all patient and prepared but had been optimistic that Riley’s recovery period would be short given our dedication to his well-being.

Cerebral Palsy Awareness

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World CP Day is being celebrated around the globe today, October 1st, 2014.

Afflicted by Cerebral Palsy is not actually how I view Riley’s condition. 

Surgery Discharge

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Surgery could have been yesterday in my mind. Let me see, it was back on August 25th and I am ready to recount arriving in the recovery room.

Riley made it through the surgery without complications.

Riley, however, disagreed with the complication free assessment.

Into Surgery

Still waiting but Riley and Dad are keeping the ER staff entertained!

It has been a long road for this family since committing Riley to Bilateral Hip Adductor and Iliopsoas Releases with Brace Application.

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Arriving with Dad for surgery. Golisano Children’s Hopsital of Southwest Florida

On August 5th Riley and his Dad, John, headed up

my Dad

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There are so many conversations I need to have…

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So much guidance I still need…

Once more I must hear “I love you”…

One more opportunity to tell you how much you mean to me…

Twenty years ago today you left us to fend for ourselves…

How I need you to be part of my life now.

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Hip Surgery Risks

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On several occasions throughout the past year, John and I weighed the merits and risks of putting Riley through soft-tissue lengthening to alleviate the strain his tight tendons were putting on the left hip joint.   We knew that eventually Riley would require the surgery.

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